Patient Stories

Experience some of our featured stories from volunteers, donors and supporters.

Elmarie’s Story

If not for the guidance of the Corneal Dystrophy Foundation and the Fuchs Friends group, I would still sit in almost darkness, with little hope. Now I can go for walks on my own and soon I'll be getting new spectacles, which will ...

Helped by them

I was diagnosed with Fuchs dystrophy after cataract surgery from a highly regarded surgeon at Wilmer eye in Maryland. After taking the patch off from the surgery and I could not see it was just a matter fact - oh you have Fuchs ...

Esta’s Story – Please don’t wait!

I was born with amblyopia left eye and astigmatism, and decades later developed cataracts and floaters. Despite Ophthalmic exams, I went undiagnosed with my vision declining to legally blind in left eye and severe symptoms effecting ...

Sarah’s Story

I am 31 years old and was diagnosed with Fuchs' Dystrophy about 4 years ago. It was a shocking diagnosis to both my doctor and me. I was told at 27 years old that I will lose my quality of life because my vision will go, and that I ...

Skipster’s Story

I was diagnosed with Fuchs Corneal Dystrophy (FCD) in 2008 at the age of 56. I learned that it was a gradually progressive disease which, eventually, would likely lead to significant visual deterioration and need to be addressed with ...

The Corneal Dystrophy Foundation members helped me in my darkest days

The Corneal Dystrophy Foundation members helped me in my darkest days. I am a partial corneal transplant recipient. The surgeon had reassured me that fewer than one percent of transplants fail. Well. My first transplant fell into that ...

Seacynth’s Story

About five years ago, I was diagnosed with Fuchs’ Dystrophy. Needless to say, I was terrified of going blind. I was so upset, that I couldn’t even google my diagnosis. I was lucky to have a friend offer to do research for me ...

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What our members are saying…

During a routine eye exam in 2024 I was told I had “Fuchs Corneal Dystrophy”. What is that?! As I Googled and AI’d and even saw a cornea specialist I still had so many questions.

Enter the Fuchs Friends, part of the Corneal Dystrophy Foundation. This group provides multiple well resourced educational pieces. Most useful for me is the Friends group. Every day, if I want, I receive emails with comments and stories of others with this condition. What makes this group stand out so much is the active presence of mentors and moderators who provide balanced, informed, kind information and coaching.

Although not rare this condition is not common enough for even eye doctors to have much experience with it. The CDF is THE leader in providing information, education and support to clinicians and patients alike.

This story was originally posted on GreatNonProfit website

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