In January, we had a small but lively and rewarding meeting that included two new participants who each drove an hour or more to attend their first corneal dystrophy support group meeting.
We discussed experiences consulting with Dr. Albert Jun at the Johns Hopkins Wilmer Eye Institute, including the process of planning for and undergoing corneal tissue transplantation.
The discussion included ideas for developing a patient checklist for corneal surgery, encouraging ophthalmologists to refer patients to our group, and scheduling the group’s ongoing meetings.
On the latter point, facilitator Cal Pierce emphasized that he plans to make the meeting opportunity available each month in 2019. He doesn’t expect people to attend every month, but does look forward to more discussions with those who attend future meetings.
Our next meeting will be Saturday, 16 February, 2019