About

The Corneal Dystrophy Foundation started in 1998 as a grass-roots patient to patient online support group (called Fuchs’ Friends) to exchange knowledge about the genetic and practical issues patients had with corneal dystrophies. It continued to grow until it encompassed people in over 150 countries and currently has a sustaining membership of approximately 3000.

Who we are

The Corneal Dystrophy Foundation is a 501c3 organization made up of caring, giving people whose lives have been impacted by a corneal disease. This disease has the potential to render them blind without the medical intervention of wonderful doctors who have chosen this as their life's work.

We are so grateful for the opportunity to restore our vision and improve our own lives that we must tell others about the work that has been done and allow others the same opportunity.

What we do

Research by finding the latest technological advances and then sharing them via social media.

Provide a secure support group website for those hoping to learn about all aspects of corneal dystrophies with access to moderators to help answer questions.

Compose written educational materials, newsletters and webinars.

Organize and deliver regularly scheduled symposiums with experts in the field of Corneal Dystrophies. These meetings are open to all interested parties.

Produce DVDs of Vision Experts' presentations available for a contribution.

Sponsor regular geographical meetings for local groups to share and learn from each other.

Assist those less fortunate in finding ways to procure needed services.

Maintain and finance a website with extensive information and materials about Corneal Dystrophies

Our reach is worldwide: 180 Countries in 116 languages.

Why we do it

The people involved with The Corneal Dystrophy Foundation know and understand the feelings of helplessness and hopelessness when first diagnosed.

We are driven by the need to share what we have learned. We do so by ensuring that others are well educated in the condition they have; by showing them how to find well qualified doctors and appropriate medical service; and by giving them the encouragement they need to receive the best results possible.

How We Provide Support

The Corneal Dystrophy Foundation provides support and information for individuals and families with a corneal dystrophy. We do this through several channels in addition to this website:

Mission/Values

The mission of The Corneal Dystrophy foundation is to give hope through education and support.

Our values are:

  • Education - Education empowers people to make informed decisions.
  • Responsiveness - This organization is committed to quickly respond to inquiries from people in need of support or education about corneal dystrophy.
  • Advocacy - On behalf of those with corneal dystrophies, we actively advocate for recognition of their special medical and visual needs with:
  • Medical providers
  • Insurance companies
  • Federal and State Governments
  • Collaboration - We strive to encourage collaboration with and between professionals in the several disclipines germane to corneal dystrophies to cross fertilize their individual efforts by sharing.
  • Respect - We promise to respectfully work with each individual who needs our services.
  • Innovation - We constantly research new and innovative methods of providing education and support to those needing our help.
  • Integrity - Whistleblower Policy
  • Public Accountability - Disclosure of Conflicts of Interest

What and Why?

The Corneal Dystrophy Foundation is a 501c3 organization made up of caring, giving people whose lives have been impacted by a corneal disease, with the potential to render us blind without the medical intervention of wonderful people who have chosen this as their life's work.

We are so grateful for the opportunity to restore our vision and improve our own lives that we must tell others about the work that has been done and allow others the same opportunity.

What we do

  • Research by finding the latest technological advances and then share it via social media.
  • Provide a secure support group website for those hoping to learn about all aspects of corneal dystrophies with access to moderators to help answer your questions.
  • Compose written educational materials, Newsletters and Webinars.
  • Organize and deliver a regularly scheduled symposium with experts in the field of Corneal Dystrophies which is open to all interested parties.
  • Produce DVDs of Vision Experts' presentations available by contribution.
  • Sponsor regular geographical meetings for local groups to share and learn from each other.
  • Assist those less fortunate in finding ways to access needed services
  • Maintain and finance a website with extensive information and materials about Corneal Dystrophies
  • Our reach is worldwide: 180 Countries in 116 Languages.

Why we do it

The people involved with The Corneal Dystrophy Foundation know and understand the feelings of helplessness and hopelessness when first diagnosed.

We are driven by the need to share what we have learned. To ensure that others are well educated in the condition they have, in how to find well qualified doctors, in how to access appropriate medical services and how to ensure they receive the best results possible.

What our members are saying...

“...then I found this group...we’re so thrilled and so indebted to all of you in this group for the amazing information you provide. And we hope that (my husband’s) journey through this process will inspire others.”
- Skye, California

“Thank you for sending me the April Newsletter. In 2005 my daughter was able to contact your Fuchs’ Friends Group on the internet and collect many encouraging testimonies of those who had success with Dr. Terry and his procedure. The result of my trip to Portland and Dr. Terry’s surgery I came home with perfect vision in my right eye! ...I thank God daily for Dr. Terry and his mission for good vision.”
- Irving, Arkansa

What our Donors Are Saying...

“Thank you for all the work you do to help everyone with Fuchs’”.
- Ruth, Florida

“In memory of your co-founder and the extraordinary kindness she showed me. I am only too happy to enclose our check towards your fine work.”
- Dan, Ohio

What Doctors Are Saying...

The patients whom I see who are members of your Fuchs’ Friends group are extremely well educated…The Corneal Dystrophy Foundation should be commended on their passion for helping others as well as on their teaching efforts.

Dr. Natalie Afshari,
Professor of Ophthalmology
University Of California, San Diego

“I commend The Corneal Dystrophy Foundation for the work you are doing and what you plan to do ….CDF… it’s Just been a wonderful partnership”.

Dr. David G. Hwang,
Professor & Director of Corneal Services
University of California, San Francisco